Support Groups & Programs
We know that each unique diagnosis affects individuals, care partners and family members differently, so we offer various support groups and classes based on diagnosis or age of onset.
Northwestern Medicine HD Support Group
This Huntington's Disease support group is held the second Saturday of every month at 10 a.m. (CT) via Zoom. On odd months, it's a caregiver support group; on even months, it focuses on general HD support. Register to join the group and contact Emily Zivin, LCSW, at firstname.lastname@example.org for more information.
For the months that we are hosting education sessions, we will be hosting a support group after the education session. Dates of upcoming sessions are listed below.
Saturday, April 9: Asymptomatic Gene-Positive
Please join Seth Rotberg as he shares his HD journey. This will be an interactive session for individuals who are asymptomatic gene-positive. The general HD support group will follow this education session. Please register in advance.
Saturday, August 13: Couples Retreat
Please join Emily Zivin as she provides an interactive education session for couples to talk about their HD journey together with other couples in the community. The general HD support group will follow this education session. Please register in advance.
Saturday, Nov. 12: Clinical Research Update with Dr. Danny Bega
Register in advance for this meeting.